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Muscular Dystrophy Awareness & Fun Camp, 14 April 2019 – New Delhi – Sri Hari Sewa Trust
Registered under The Indian Trust Act, 1882

Muscular Dystrophy Awareness & Fun Camp, 14 April 2019 – New Delhi

On: April 14, 2019

Camp held on 14th April 2019, Sunday in New Delhi

More than 250 people, including 59 Muscular Dystrophy affected children and adults participated in fun-filled day long event.

The camp is being organised in association with Indian Association of Muscular Dystrophy (IAMD).

Ms Sanjana Goyal, President of IAMD who is running IAMD centre in Solan, Delhi and Chandigarh says, “This is the first ever initiative of its kind in our country. Muscular Dystrophy as a subject is rarely touched upon. I feel it takes effort to bring MD patients out of their shells. This camp is one such effort which provides people living with Muscular Dystrophy a day to live the way they deserve. They are equally able but due to severe physical disability and finances, they lack opportunities. I congratulate the team for organising this event and pray that the spirit of the team SHST never fades away.” Many dignitaries are also attending the camp to motivate afflicts of Muscular Dystrophy.

Sh Nitin Patnia, one trustees of the SHST, says, “We always look out to reach to the most negligible area and MD is one of them. There is absolutely no awareness, research and philanthropic attention about MD in India. We decided to help IAMD financially and logistically. We also aid some patients through finance, empowerment and by restoring their self confidence. We feel extremely privileged to be associated with this cause and trying to put in our little Sewa. We plan to grow beyond North India as well and look to collaborate with other such initiatives in the field of Muscular dystrophy. We want to appeal to those who are well endowed, to come forward for join us.”

I have attended this camp first time. This camp was knowledgeable and I am speechless. Thanks to IAMS and Sri Hari Sewa Trust.  I feel here like a family.

                                       Yogesh Kumar

Nice & enjoyable session. Thanks for giving me a chance to know more about disease. I got to know more therapy & exercise.  Have a good time here.  Hope you will arrange these kind of sessions more in future.
      
Manoj Sharma

Thanks you for organising such an event. God bless all of Children.  Any new medical development & updated.

                                         –       Karamjeet Singh

 

It was actually amazing.  I loved it a lot.  The balloon ceremony was amazing.

                                            – A Tripathi

Event Details

  • Date : 04/14/2019
  • Time : 10:00 AM to 04:30 PM
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